New Bartonella Treatment and Neuropathy Medications

So after suffering for some time with extreme hearing sensitivities and brain weirdness which is common neuropathy issues, (dizzy, buzzing, zapping, Bells Palsy, facial weakness, eye pain, back of the ear pain, weakness in my right arm, heart palpitations, chest and rib pains, watery eye, droopy face, lightheaded, whooshy sensations, slow speech, slurring, emotional wreck with crying spells)

I went to see my LLMD and after reviewing everything he decided it was time to change up my treatment.

He said over the past 4 months he has been researching Bartonella and also he met with other Lyme specialists and he has some concerns about Rifampin, which is what he was treating my bartonella with.

So now my new medications are Cipro, Cefdanier (Sp?) and he has me on a neuropathy med called Gabapetin. I am still on Plaquenil too.

As of right now he said I am the only patient of his on this new protocol. Don't I feel special...haha..

So I am still battling Bartonella. Fun fun...I was on Mino and Rifampin for almost 4 months and it made me feel so much better but then I did the stupid thing, I stopped taking everything cold turkey, but within 10 days my brain stuff came back, slowly, but by August I was in full force and back on meds. He did say 14 days is usually how long it takes to get symptoms back if it's not dead yet. He was right.

So once again I am back on treatment and this time I will not go off. And this is going to take time. I have been on treatment for almost a year. My Lyme symptoms are virtually non existent..the neck pain, joint pains, weak arm and wrists, headaches, arthritis are 98% gone!

So once again I covet your prayers for this new medication, I don't want to herx or have an allergic reaction.

Discouraged and yet hopeful still.....Jesus my Hope!

It's so difficult living with an invisible disease. Day after day I live with symptoms not noticeable to most folks, mostly my hearing sensitivity issues and my brain weirdness as I call it. I'm exhausted and very emotional, crying episodes are more frequent now.

For weeks now I have been experiencing the dizziness, brain zapping, vibrating, buzzy sensations and facial numbness and slight Bells Palsy like symptoms of drooping feeling and my eyes feeling like so much pressure is on them that they are literally drooping closed. Slurred speech and the great efforts to speak sometimes. I feel like my brain has to work so hard to just get sentences out. I gasp for a breathe after I speak so many times as I feel over exerted. So strange these things.

I was doing so well just weeks prior that I am so discouraged that it all came back, full force in my brain this time. 

Yet I am still hopeful because I know the Lord provided us with a LLMD that knows what he's doing and he understands where I am at. And he really genuinely cares for me.

I called yesterday to let him know whats been going on since he started me back on Mino and Rifampin.  His instructions were to immediately get off Mino and Rifampin and start back on Lyme treatment of Plaquenil and Amox and Clarithromycin.  And he wants me to come in ASAP, not wait till my September 25th appointment. So I go in this Tuesday Aug 26th.

It's been almost a year since my diagnosis of Lyme Disease, and 10 months of abx treatments. Will this end? Will I be normal ever again? I just read this sad story of a lady who suffered and took her own life. Broke my heart! Her worst symptom is what mine is, hyperacusis, hearing sensitivity.

I am so glad I know my life here on this earth is temporal. I do look forward to a perfect body, no more Lyme. I hold to this hope. This is my only Hope. Jesus. I may never be 100% freed from this disease and I really am ok with it. I wish it weren't so, but the more I am sick, the longer I am sick, I am so grateful for my spiritual healing, that I am saved and redeemed by the Blood of the Lamb. I cant imagine going through this without the Hope of eternal Life through Jesus Christ. Knowing that this world is not my home, I have such greater joy to look forward too. Keeping my eyes fixed on the knowledge of my eternal home in glory, forever with my Savior.  

If you suffer from this disease or any other chronic illness and you do not know Christ you will be discouraged and feel it's hopeless. Turn to Christ! There is no hope without Christ! Your body may never be healed here on this earth. But more scary is if your soul would not be healed from the sickness of sin and death. Please please, I beg you, take the time to consider your standing with God Almighty. Please visit this website and read with an open heart. 

Back on Minocycline..Fighting Bartonella!

Well I was doing so well and still have no joint pains and headaches but I started getting more brain weirdness, buzzy, zapping, whooshing sensations, dizzy spells and lightheadedness...then the hearing sensitivity returned. I thought maybe this was just residual effects of die offs and candida stuff.

I also had not called my LLMD and spoke to him since I had quit cold turkey the antibiotics, so this morning I put the call in and waited to hear from him, thinking the entire time I AM IN SO MUCH TROUBLE!

But once again my LLMD proves to be the most compassionate, understanding soul. He completely understood my predicament with the financial strain of getting my monthly medications and all of Kayla's bills that keep flying in.

After discussing with him the improvements and then letting him know that I was having the brain weirdness, he said he is completely sure that I am still battling Bartonella as Bartonella attacks the neuro pathways and your central nervous system. The buzzing, zappy, brain fog and hearing sensitivity is all the bacteria still attacking my CNS.

The good news he was delighted to hear was my hemoglobin went from a low 8 to a whopping 13.5! I gained 5 units of blood which is remarkable!

However his concern is if I am not treating the Bartonella, it will once again go and feast on my red blood cells and I will go right back down to that low hemoglobin number.  And I do not want to be there again! I felt horrible!

So for now he said I can take one 100mg of the Mino a day, and a Rifampin every other day to help keep costs down. He said anything, even this low dosage is better than nothing as we still need to keep fighting this bacteria.

He's officially taken the focus off of Lyme Disease and now we are battling Bartonella which I have read is WORSE than Lyme! UGH!

"Babesia and Bartonella are not little addendums to Lyme disease, but are often far more serious than Lyme disease. Any physician who is not well-versed in these two killing infections perhaps should not be considered competent enough to treat patients with flea and tick infections. These infections do not circle around planet “Lyme” like small moons, instead, they are their own huge planets that cause massive consequences to the human body." Dr. James Schaller M.D.

So here I go, back on Mino and Rifampin, hoping to get rid of these symptoms once and for all! At least I am doing much better in many other ways so for this I rejoice and praise God for always giving us answers and directing us when we asked Him for direction. I found this website too that has info about other ways to treat Bart as Bart can be tricky to kill with abx alone.

Psalm 34:4

"I sought the Lord, and He answered me and delivered me from all my fears."