Kayla on left, Kiara on right.
So to get to my diagnosis, the very day we went to see our LLMD for Kayla, we got home, it's an almost 3 hour drive to his office, so I was pretty tired and my heels were as usual aching, so Kayla was giving me a spa treatment as she calls it, she was massaging my heels when she stopped and I felt her pick something off my ankle. She said in a worried voice, "Mommy, I think you have a bloated deer tick". I took it from her fingers and sure enough, a teenie, tiny, poppy seed sized bloated tick. I thought how ironic that this happens the very day we took Kayla in to the LLMD. He educated us a lot on Lyme and he had us watch the documentary Under Our Skin, so I felt Lyme literate now so I did what most folks do...I stuck the tick in a container and waited to see if I developed Lyme symptoms. FYI....CALL THE DOC ASAP! ehem.....the one pic shows how tiny deer ticks are, and this one is a bloated tick, the second pic we used a magnifying app on my Iphone to get a closer, magnified shot. Isn't it gross looking? We named it "The Germinator".
Four and a half weeks went by and I continued with my normal aches and pains, then one day I felt so sick. My brain fog returned full force, I was falling asleep at odd hours, my neck was stiff and hurting more than ever, my body aches got worse. I waited a week to see if it was just a flu but it wouldn't subside so my husband commanded me to call our LLMD. So I did and he reprimanded me so bad saying, "Didn't I give you enough information about tick bites and Lyme and you should have called me the day you found the tick and I could have started doxy"...he went on and on and then made me an appt.
FINALLY SOME ANSWERS!
At this point we were researching Lyme so much that we were starting to wonder if all these years my symptoms were in fact Lyme, so I pulled all my medical history to bring to our LLMD.
He spent 3 and a half hours musing over my medical history, underlining, highlighting, circling, every now and then he would ask me a question but he went right back to my paperwork, he had me fill out a survey circling any symptoms I had ever had and surprisingly EVERY symptom I had over the years were on this survey. Even ones I had never really paid too much attention to like hair loss, rib pain, chest pain, blurry vision. See a comprehensive list here.
I sat there patiently, just waiting, when he finally stacked my papers up and lowered his glasses and looked at me and said very frankly,
"Donna, you have Lyme disease."
I sat there stunned, I asked him several times, "Are you sure?" he just would look at me and reiterate again, "You have Lyme disease, you are a classic case actually"
He then went through all my history and did a thorough explanation of everything from the tennis elbow, to fibro etc. He even told me to not feel ill towards all those doctors as he felt they were really trying to help me as he saw no medical language of me being a hypochondriac, I guess many doctors do this in the paperwork.
He has been diagnosing and treating hundreds of Lyme patients for 11 years. I knew I could trust this man. Everything inside of me was saying, "I know, I know I have this, it's the only explanation".
So now begins my long treatment.
So this is my story believe it or not in a nutshell. The rest of the blog I will focus on what treatment has been like and the symptom I still deal with. My LLMD said this will be a long road as I have had this for over 6 years. But he's confident I am strong enough to fight this.
The Lord answered my prayer in a miraculous way. If Kayla had not been bit and had a classic bullseye rash, I would probably be sicker today. Truly His ways are not our ways, but His ways are always perfect and good.
Oh, the depth of the riches and wisdom and knowledge of God! How unsearchable are His judgments and how inscrutable His ways!
I am so thankful that the Lord has given me answers and I know He will be with me as I daily fight this bug. I hope my story encourages many and also gives answers to many.
All glory to God!
Soli Deo Gloria!
Donna
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