What is going on with me? Why are everyday normal sounds making my ears and head go crazy? It's like someone turned up the volume in the world around me!
The condition is called Hyperacusis and is a wonderful Lyme symptom.
**Lyme disease patients can experience an extreme sensitivity to sound, also known as auditory hyperacusis. In some patients it is limited to louder sounds, but in the more severe cases "ordinary" sounds can be very debilitating. The impact can be felt throughout the body, and this condition can affect every aspect of daily living. Patients can experience heightened awareness and an inability to tolerate conversation, running water, page turning, the humming of electronic devices, other people's breathing, etc. These normal everyday sounds become painful and unbearable, and as a result the individual's ability to leave the home is greatly limited. Patients may also experience an increased startle response and an "electric shock" type feeling.
Sounds can also induce dizziness, and this is called Tullio's phenomenon or audiogenic seizure disorder. According to Jenifer Nields, MD, "This peculiar short-circuiting of the inner ear's auditory and vestibular functions is known as the Tullio phenomenon. This phenomenon has been deemed pathognomonic for syphilis (43) but, as it appears, can occur in Lyme disease as well (41), and thus provides one more example of the "new great imitator," Lyme disease, imitating the old "great imitator," syphilis (1)." (Psychiatric Quarterly, Spring 1992). Vestibular Hyperacusis can also affect the autonomic nervous system.
Sometimes another central auditory processing disorder, tinnitus (buzzing or ringing in the ear), can accompany hyperacusis. Lyme disease patients can also experience sensitivities to light, smells, taste, touch, motion and/or temperatures.
**Taken from Lyme Info
This is my most debilitating symptom. Do you know anyone who has managed to resolve this symptom?
ReplyDeleteI don't know so I am hoping through my blog maybe I can get some answers and relief?
ReplyDeleteI think clinking of dishes, sliding of the shower curtain or setting a mug down on the counter are the worst sounds.
ReplyDeleteYes dishes are awful, putting away the silverware makes me cringe! Sudden loud noises too.
ReplyDeleteI feel horrible that I have to keep telling my kids to be quiet. Also, friends don't understand why I hate to talk on the phone. I really really want to know how to stop this. I read once that they make an anti-hearing aid but that they are very expensive. I keep stocked up on ear plugs but they are so uncomfortable. Thank you for sharing this. I feel a bit better knowing it's not just me being "weird."
ReplyDeleteOh Cindy you are certainly not alone! So sorry you have to deal with this too. Mine isn't as bad as many folks have shared so for that I am so grateful, but I am concerned of it getting worse so hoping to get some answers for relief. I will update my blog whenever I do learn new information. God bless you!
ReplyDeleteHannah has Vestibular Hyperacusis and has found some help from Irlen glasses. http://irlen.com/
ReplyDeleteFlorescent lights make her terribly ill. That is actually how we found out about our Lyme. Hannah has such strange things happening and as we researched what was happening to her, it all fell into place and made sense.
Oh my Lora! I am so glad you found out what was wrong! How's treatment going? And are ya'll doing abx or natural remedies? This Lyme is so awful! I know too many folks that have it.
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