I share this so that folks who are starting their treatments can get an idea of what others have gone through and what reactions they may have experienced. Everyone is different but some herxing is the same so it's very helpful to read others testimonies.
So here we are again.....same story, not quiet as painful as the last time but herxing once again from Mino.
Here's the run down of what happened.
I shared here, about the change in treatment as we realized I was battling a co infection called Bartonella. This is when I was introduced to Minocycline.
Since I herxed really bad the last time with the Mino, my LLMD wanted me to start back slowly after our trip to Texas. So on April 23rd I took my first 50mg dose. I did 50mg for 4 days, then 100mg for 7 days then last Sunday I did 200mg increase, which was the last increase. Now I was doing pretty good even on the 100mg, not realizing the restlessness and agitation I was feeling all along was indeed a herx. I just was dealing with it hoping it would go away. I felt so fidgety and it was hard to sit still sometimes.
Monday I was fine, even drove to NH and did an all day shopping trip. But by night I felt woozy in the head.
Tuesday felt fine during the day, drove to piano lessons, but by evening I felt woozy in the head.
Wednesday daytime, felt fine, but by 5pm I was spacing out. I was groggy feeling, lightheaded, trouble moving and speaking. No pain involved but just almost drunk feeling. Was so hard to stay awake and attentive for our Wednesday night prayer meeting we hold at our house. Felt bad for my friends that they had to see me like this. Nausea started at this time.
Thursday again felt fine during the day except for nausea, felt like morning sickness, but by evening I was spacey again and groggy and sleepy, pressure in my left side and my left side of my face started feeling that parathesia (paralyzed droopy sensation) feeling. Nausea was horrible.
Friday morning I woke up exhausted as all night I was so sick to my stomach it was hard to sleep. So I called my LLMD. He immediately said "get off the mino"...again....he said the agitation is another herx reaction and the spacing out is also a herx. The nausea is also the medication.
So the plan is to give myself time to heal my tummy...then he wants me to go back on mino but only 50mg twice a day. So I have to break open the capsule and divide the powder. He said he thinks this is the only amount my body will be able to handle until more of the bacteria is killed off.
He believes in time, after we kill more of the bacteria off, that I might be able to handle a higher dosage but for now he is keeping things at a low dosage because of this herxing again.
Herxing is a clear sign that the bacteria are being killed off, so in a sense it is good, however too much herxing can lower your immune system because it takes such a toll on my body.
So Round 3 of Minocycline for me! Yay! NOT!
Battling one day at a time! Looking to the Lord for daily strength and endurance, with all joy knowing He is walking with me through all of this.
11 May you be strengthened with all power, according to his glorious might, for all endurance and patience with joy, Colossians 1:11
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